A Natural Approach To Health
Living With Prader-Willi
I had a question the other day about Prader-Willi syndrome.
Prader-Willi syndrome is a rare disorder present at birth resulting in several physical, mental and behavioral problems.
A key feature of Prader-Willi syndrome is a constant sense of hunger usually beginning at about 2 years old.
People with Prader-Willi syndrome want to eat constantly because they never feel full.
Many complications of Prader-Willi syndrome are due to obesity.
Signs and symptoms of Prader-Willi syndrome generally occur in several phases.
Signs may be present from birth including:
>Poor muscle tone.
>Distinct facial features.
>Failure to thrive.
>Lack of eye coordination.
>Generally poor responsiveness.
Other features of Prader-Willi syndrome appear during early childhood and remain throughout life.
These features may include:
>Food craving and weight gain.
>Underdeveloped sex organs.
>Poor growth and physical development.
>Delayed motor development.
>Other endocrine problems.
Other signs and symptoms of Prader-Willi syndrome may include:
>Nearsightedness and other vision problems.
>Light skin and hair compared with other family members.
>High pain tolerance, making it difficult to identify injury or illness.
>Problems regulating body temperatures during fever or in hot and cold places.
Prader-Willi syndrome is a genetic disorder caused by an error in one or more genes.
Although the exact genes responsible for Prader-Willi syndrome haven’t been identified, the problem seems to be in an area of chromosome 15.
Prader-Willi syndrome disrupts the normal functions of a part of the brain called the hypothalamus.
The hypothalamus controls hunger and thirst and releases hormones prompting the release of substances responsible for growth and sexual development.
A hypothalamus that isn’t working properly interferes with these processes, resulting in uncontrollable hunger, stunted growth, sexual underdevelopment and other characteristics of Prader-Willi syndrome.
Many of the possible complications of Prader-Willi syndrome result from obesity.
In addition to having constant hunger, people with the disorder have low muscle mass, so they require fewer than average calories.
This combination of factors makes them prone to obesity and the medical problems related to obesity.
A definitive diagnosis can almost always be made with a lab test.
If you need more information, you can reach the Prader-Willi Syndrome Association at 800-926-4797.
There is no cure, but you can do things to improve quality of life.
To deal with Prader-Willi it’s beneficial to:
*Drink 6-8 cups of purified water daily to hydrate and flush toxins.
*Stick to strict meal plan.
*Take steps to help prevent binge eating.
*Encourage regular daily activity.
*Review my post on keeping clean on the inside.
*Breathe easier; purify indoor air.
*Increase essential fats (flax oil, olive oil, Omega-3 oils).
*Consume a 50% raw food diet: lots of fresh, raw fruits and veggies (organic when possible). Include fresh juicing.
*Increase fresh air, sunshine, connect to nature, adequate rest.
*Ensure regular (2 per day) bowel movements.
*Decrease toxic exposures of all kinds.
*Investigate and eliminate “hidden” allergies/sensitivities.
*Decrease or eliminate any and all hydrogenated, trans fats, and deep-fried foods.
*Decrease or eliminate sugar-laden foods, white flour products, simple carbs.
*Decrease or eliminate processed, instant, chemical-laden, “lifeless” foods.
*Decrease or eliminate smoking, alcohol, coffee, soda pop, processed juices.
*Become educated about all possible side effects and detrimental influences of any medications or treatment procedures you are taking or considering.
*Research and address underlying Candida issues.
*Avoid MSG and artificial sweeteners as they are neurotoxins.
*Explore dental amalgam toxicity.